March 17, 2009

Happy St. Patty's Day!

Many people have emailed in the last few days asking how Taylor has been doing at home and how the whole family is adjusting. No news is good news...but I thought I'd post an update as well.

Overall things are going very well. We are still not getting much sleep because Taylor eats about half of what she did at each feeding prior to surgery, and much more often (including at night). She seems to be feeling better and better each day which is very promising. She had good check-ups with both her regular pediatrician and the cardiologist this week. The cardiologist felt that the first surgery was successful and that everything was just where it should be and on track for the second surgery in June/July. He referred us to a pulminologist to keep closer tabs on her airway recovery as well. We should have that appointment in the next few weeks.

We are looking forward to the end of cold/flu season with the approach of spring and the opportunity to get her outside. We will have to be very careful about being around large groups of people/kids and anyone who is sick as she will continue to be very susceptible to illness, but we won't have to live in a "bubble" of being home as the warm weather approaches.

Cameron and Emileigh seem to be doing OK, though Cam has been a bit more quiet and irritable lately. We are trying very hard to spend as much time with them as we can and also return to "normal" interaction for them with their baby sister. Since they both have had stuffed noses and coughs over the last week the return to normal interaction hasn't been as swift as any of us would like.

We continue to appreciate the calls, cards and offers of meals and help. We are learning very quickly, especially as tired as we are, to say yes to these offers. Thank you!!!

Please keep Taylor and our whole family on your prayer lists. Please pray for continued progress for Taylor, as well as patience, strength and sleep for the rest of us.