Thursday, October 15, 2009

Taylor Update - October 15, 2009






Wow! It has been a long while since I last posted an update on Taylor. Remember, no news is good news. That being said, we really appreciate all of you checking regularly and checking in with us to see how she is doing. She is doing GREAT!!! Since September 10 we have had four check-up appointments: Taylor's 9 month wellness check, a visit with her pulmonologist, a follow-up with the GI doc and today her cardiology appointment. All good news to report!!!

Taylor continues to make great strides towards developmental milestones. She now weighs 19 pounds, is crawling and talking up a storm (lots of dadas and babas, etc.). At her 6 month early intervention appointment (speech therapy) she had met all but two of her feeding goals almost 6 months ahead of schedule. Her speech development will continue to be monitored through her first birthday and then we will meet again to determine if services will continue.

The pulmonolgist saw Taylor as she was just starting with a cold - which was a good thing. He told us to keep her as healthy as we can through the winter and to keep in touch. We will see him again late in December unless something comes up before then. He feels that her lungs are still developing slowly and she is particularly susceptible to respiratory infections. He prescribed a new nebulizer treatment to use as needed. It worked wonders with her cold and congestion and she quickly cleared up in about a week - just in time for us to head to the Outer Banks with Jason's parents. We had a wonderful time on our first family vacation since Taylor was born.

Other medical updates: Taylor is no longer taking medication for reflux. Her symptoms have abated as she had moved on to solids and grown a bit. We will just use the Prevacid as needed or when she has a cough to protect her airway from getting irritated. :)
Today was the appointment with her cardiologist. No surprises!!! Her SATS were low 80's which is great for her. The Glenn is functioning just as it should and her blood flow and pressures are just what they need to be. Her growth is good and is progressing just as they would like it to. We heard that her next surgery will be when she is about 30 pounds or between the ages of 2 and 3 depending on how she is doing. No limits on activity for her and we don't need to go back till January! We may see her get a bit "bluer" as she starts to be more physically active as then the blood needed in the lower extremities will be greater and more "blue" blood will be returning to the heart. Nothing to be concerned about. She looks pink and great to us now!!!

Thank you, thank you for your support of Inova Fairfax Hospital for Women and Children - Pediatric Cardiology department and my participation in the Star Kid 8K on October 10. Thanks to your generosity we contributed $2000 to the cause and the race itself raised over $40,000!!! Wow. We were so happy to be a part of this event and look forward to it again next year. Special thanks to our friends and neighbors as well as co-workers who ran with me.

Cameron and Emileigh are doing well also. All 3 kids are in the wonderful care of our new nanny Whitney. She is wonderful with the kids and we feel very blessed to have her as a part of our family. We are currently busy with sports (Flag Football, Swimming, Soccer and Dance) and all of the other things that life brings us (work, friends, etc.).


I will send more updates when I have them. Love to all from Taylor and all the Goodloes!