July 5, 2011 - last day here!!!

Just got word that they are pulling the tube this afternoon and sending us home!!! Yippee!!

Thanks for all the prayers, meals and help.

Please pray for our new friend Parker M who is in surgery now for Tetralogy of Fallout. She is 6 weeks old. We pray for success and a speedy recovery.

July 3, 2011

Taylor's chest tube drainaage yesterday was half of what it had been the day before which is great. The plan is to watch it decline to the teens (we were at 68 yesterday) and then pull the tube and go home. Wednesday maybe...

Thanks to the Schumans and Shermans for hosting Jason, Cam and Em last evening. This afternoon I will go home and take the kids to the pool and neighborhood fireworks. Tomorrow morning I am running in the Let Freedom Ring 5K before heading back here for the evening with Taylor.

We will keep you posted!!!

July 2, 2011 - Day 23

Well...we are still here. Sorry no posts for a few days. We were bummed to learn Thursday that Taylor's Chylothorax had not healed and the full fat diet caused about 300 cc of fluid to pool in the right chest cavity. So the low drainage we had accomplished earlier in the week was eradicated and we had to revert to fat free again.
Good new...the drain is still sunctioning well and the fluid drained off quickly Thursday. It drastically reduced Friday and is even less today.

The plan is to get back to a very low level and then pull out the chest tube and go home with a strict fat free diet for about a month. No problem!!!

Bad news...we are stuck here through July 4th and all of us have just about had enough,especially T. Cam and Em visited today after the swim meet and Jason is now home with them and will enjoy two neighborhood BBQs tonight. Sigh...I will go home tomorrow and switch for neighborhood fireworks and happy hour.

So many have offered to assist us with shopping, the kids, etc and we greatly appreciated it!! The meals and nutritious snacks from the Maniks, McClesky's, Miriam R., the Hodinkos and Gareys are so appreciated. Hope to see you all very, very soon. LOve to all!!!