Big sigh....
Still here. Taylor continues to struggle with clearing the mucus and congestion out of her upper airway. Adding an additional nebulizer treatment this evening to see if it helps. Everyone has cleared her to go home except the pulminologist. Feeding is still an issue though earlier today she took 6 ounces by bottle in two different feedings. We are trying to do it all by bottle right now to see is she has the stamina to do that. The GI doc wants us to go home on a feeding tube and gradually wean her off as her strength improves. The pulmonologist would prefer to get the tube out to see if that helps Taylor clear everything out. We are trying our best to feed her when she seems up to it. It was an exhausting afternoon for Taylor (and me and Jason), but we will keep on, keeping on.
I was pleased to hear that the orders for all the medical equipment we may need were written and being worked on by Kaiser this afternoon so hopefully there won't be any delay once we are discharged. Lots of meds to give for a few weeks and probably several nurse "weight check" visits. Jason and I will be taught how to put in the tube as well as give Taylor the shot of anti-coag med she will need for a bit longer. All things we can handle if it means getting Taylor home!!!
It is amazing what a change of environment does for her. We have walked her around and taken her to the courtyard on the pediatric floor and she LOVES the stimulation. The therapists have been very happy with how she is progressing physically and that she is starting to smile and play again. We feel that getting her home will only enhance the speed of her recovery.
Hope you enjoy a beautiful weekend! We hope to share very good news about Taylor's homecoming very, very soon. Please pray for that!
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