Monday, March 2

This afternoon Taylor's breathing tube was removed and she is currently breathing with the aid of a CPAP device (Constant Positive Air Pressure). The purpose of the CPAP is to maintain the pressure in her airway as she breathes to combat any "floppiness" caused by the previous pressure of the enlarged blood vessels. She was awake and alert and a bit annoyed with all of the various tubes, etc. this afternoon. Tonight the team plans to try to lower the amount of pressure she is receiving to see how she adapts. She is still on a feeding tube and we hope she will get to resume feeds through the tube later tonight as well. Right now they don't want her to get too much air in her tummy while eating and on the CPAP because that could make her stomach upset. She continues to receive IV fluids to keep her belly somewhat full and her hydrated.

Overall a good day of progress. Please keep praying for the healing of her airway as this is the significant hurdle she will need to clear in order to come out of the PICU and eventually home.

We had a delicious meal from the McConnells tonight with plenty of leftovers for lunch at the hospital tomorrow. Cameron and Emileigh enjoyed a fun filled snow day with their best buds, Sam and Grace Hilburger. Thank you!!!

Jason is going to try to go into the office for a few hours tomorrow and I will be with Taylor at Fairfax. I know the kids are hoping for another snow day...