Well we are still staying at the lovely INOVA Fairfax Hotel and Spa!!!
This morning the surgeons told Jason they would discharge T tomorrow and let her go home with the chest tube. We will need to continue to follow the diet. However, her regular Cardiologist does not want her to be the first Fontan kid to go home witha tube as the team does ot have a set protocol to deal with issues if they arise.
Sigh...the drain keeps draining, the diet keeps going and you know where to find us!!!
Love to al and please pray that her chest stops draining soon!!!
Happy last day of school. Many thanks to Miriam Rutherford, the Cognetta family, the Appler family and Kristin Lisenby and Amy Whiteman for all of the tasty snacls and meals.
Subscribe to:
Post Comments (Atom)
Ohhh... Bummer!! What an emotional roller coaster! We're visiting my parents this week... I hope I can't come visit you when we return! Hang in there...
ReplyDeleteXOXO,
Linzy, Chris, Abby and Hayley